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sprue/celiac: another way to bring people in...

 
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checkingitout8




checkingitout8

Joined:
June 4, 2012
Posts: 7

PostPosted:     Post subject: sprue/celiac: another way to bring people in...
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Hi,

recently, a 'singles with food allergies' network opened, and advertises itself as 'Free', at least for now. I talked with their database developer (through email), as there are fields for country, however they are only visible, not editable. So... strangely enough, the people who run the site decided that only people within the 50 States and territories of the United States Federal Trading Corporation ('Country') can have an allergy to modern grain (non-)preparation methods, and qualify to meet each other. The rest are forgotten.

The way modern grains are (not) prepared (properly) has led to a lot of people, probably over 80%, having some kind of grain-related 'allergy' to the toxins naturally-present in the grain.

However, only a minority of the population realizes how big this problem is, and how much it is underneath a number of other health concerns. So it's difficult to find others who are aware of this issue. It also means, anyone we date, we would prefer that they are at least aware of the poisons naturally occurring in the food. This means they must have the sensitivity to their own bodies' reactions to the various unprocessed elements of grain which cause problems. People of this level of sensitivity are seldom.

What about creating a network catering to those with Sprue / Celiac? I have contacted the Singles with food allergies folks numerous times, numerous ways, and as I wrote, it was only possible to communicate with their hosting service, and through the technical department, the database developer (who passed it onto them, but does not have a say in deciding).

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feedback

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January 5, 2005
Posts: 970

PostPosted:     Post subject:
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Thanks for your suggestion.

You may not have noticed, but there is a 'Gluten Free Diet' option within the 'Food' section of the registration process.

That option was added within the last few months though, so only a small portion of the network members will have had it available when they originally created their accounts.

Anyone can go back and edit their account choices though.

We would like to encourage anyone on a Gluten Free Diet to go back into the 'About Me / My Interests' section (linked in the Account area) and update their account with that option.

By choosing the Food category in the Search area, and Gluten Free as a choice, you can find other members of the network who also eat a Gluten Free diet.

While we appreciate your personal interest in this issue, we don't think it makes sense for us to build out an entire site for one specific disease (ie. for Celiac Disease).

Instead (sometime within the last year), we created Health Passions, specifically to allow members who are dealing with any number of health issues to find others dealing with the same issues.

Based on your comments, we have just added Celiac Disease as a choice within the Health Passions Groups area.

It may take some time for the Group to gain any traction, but at least there are now a few options within the network that can (hopefully) help to connect you with others dealing with Gluten related issues.

Thanks,


.

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checkingitout8




checkingitout8

Joined:
June 4, 2012
Posts: 7

PostPosted:     Post subject:
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`Thank you for the reply.

Quote: While we appreciate your personal interest in this issue, we don't think it makes sense for us to build out an entire site for one specific disease

I might agree about the whole site issue and bit off more than I can chew, singles with food allergies is food allergies. The emphasis I may have inadvertently added is as what is called 'sprue/celiac', as a principal predicate for other negative food interactions.

As I spent 30 years suffering from ignorance on the issue, it must be communicated, for completion, that on the perspective regarding an allergy to a poison being a 'disease'. By reason it's not a disease in the sense of an illness or defect of the body. 'Disease' is a term I didn't use in the original post explicitly, although by popular definition it's a convenient and inaccurate label the mainstream (fake-banker-paid-for-with-fake-money) establishment players use, all the while pushing grains improperly-prepared, a natural poison, as the basis for the diet, then claiming normal reactions to the poison are a disease.

Not everyone dies immediately from Deadly Nightshade, yet one would not apply reason and principal and come up with a label of 'Deadly Nightshade Disease', when someone was ill after eating them.

----

Within the group of people well-informed enough, and sensitive enough to recognize a deliberately-encouraged poison-on-offer, that's not necessarily reasons people might actually stay together, so I'm curious to see how it works out, with only one option within the health passions site. I'm glad you built out both options and did not know they were so recent an addition, otherwise I would have noticed them earlier.



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checkingitout8




checkingitout8

Joined:
June 4, 2012
Posts: 7

PostPosted:     Post subject:
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`I had a closer look:
The only option, on Health Passions, is 'Gluten-free'. and this is misleading (although probably not intentional, so it's not a personal comment on you or the staff).

There should be a 'Grain-free' check-box. It's a more general term, however, for instance, in wheat there are at least three other chemicals besides Gluten, that create, in some people profound, reactions in the body (and mind).

For instance, I, and others, can eat gluten-free foods all day, develop bad itching, in my case in my ear canals, a moody temper, my --- itches, random patches of skin will itch, constipation, gas.. and these are 'officially sanctioned' gluten-free products from well-known companies. The grain was not contaminated in processing: the grain simply, was not processed correctly.

But do options like 'Paleo' (which I don't consider myself) get into 'Diet Passions'? In fact, I'm not sure how Health and Diet Passions, aren't more or less, one in the same network in principal.

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PostPosted:     Post subject:
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Actually, Gluten Free Diet is an option that is part of the general registration and is available for any member to choose while filling out the 'Food' section of their Account.

We will add Grain Free Diet as an option as well.

On Health Passions, within the Groups area, you should find Celiac Disease listed (as of yesterday).

And the reason Health Passions and Diet Passions are not 'one in the same', is that there are large numbers of health issues that are 'non-diet' related.

Thanks,



.

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checkingitout8




checkingitout8

Joined:
June 4, 2012
Posts: 7

PostPosted:     Post subject:
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` Quote: We will add Grain Free Diet as an option as well.

that satisfies both interests. thank you.

---

bit of the soap-box, again: for clarification, a lot of people (not all...) in what experiences I have had, use 'Celiac Disease' as a label, a badge of honour, privilege, merit, a medal earned in combat. I do not and I find that self-derogatory. Since the label has already been so heavily pre-defined by doctors (literally: those who adulterate), it peels my skin to use it verbatim, although for ease (a middle-ground), I'll use celiac alone. I was approaching this in the quickest way possible.

The convenience of having a Grain-free option, will also help those who are on some type of Paleo-diet. There are also somewhat decent physicians, who also agree for people to lose weight and change their body-chemistry, improve their immune system, energy, etc, to kick grains. There are a few exceptions to kicking grains, they're not actually 'evil' if prepared properly- so it's simplest to suggest quitting grains all-together.

----

Thanks for the support. Other people with similar circumstances, should know, there are viable options on here. This is the only dating site that includes international visitors, that also has a grain-free option, that I know of. That is a very unique position, and because of that, really the only site I can use.

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